Happy_go_lucky612's Blog

Inflammation

I have pernicious anemia and get B12 shots for the rest of my life and have gastrointestinal problems very frequently.  Recently I started to get episodes where my spine would spasm (and of course, I have 2 lumbar herniations which hurt me terribly and a nerve affecting both legs and neck, C3 herniation with nerve impingements on both sides of my neck) and then it would start affecting my heart where it would shake and it wasn't palpatations.  I started getting shaking all over my body and the chills and then it would stop only to start again in 5 minutes.  I was rushed to the hospital and I was like a person with parkinsons with their arms shaking uncontrollably and my legs where I couldn't walk steady.  I felt swelling occurring in my throat and thought I would suffocate to death and then it just passed.  I went to see a neurologist and he said that I am getting spasms in my spine and that my body is going into an inflammatory state and that the process has started.  I don't really know what that means....realistically....but I do know I'm in trouble.  I wanted to know if by fixing my herniations in my spine, the inflammatory process would get better....yes.....or......no......?  Does anyone have any ideas?  I want to get better ......and will do anything in the process!  Thanks everyone!

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melissaw72

What does you DR say about fixing the herniations in your spine?

Melissa.

courtneycb

A friend of mine has a very similar health history to yours (started with the pernicious anemia & then after many years diagnosed with Addison's as well) has had great progress, with an Endocrenologist; perhaps it would be benefical for you too? Since the (seemingly very unhelpful & dismissive) Neuro mentioned an inflamatory response, I would highly recommend an appt with a Rheumatologist!!! Isn't it awesome that so many endocrine, auto/immune, & hormone issues go hand-in-hand?!? Also, I feel your pain, literally, re bad back problems ;) For me, I'll get spasms bc my other muscles are over-compensating (buldging disk btw L4&L5 & 2 fractured facets) & my whole body gets out of whack which=more pain, in different areas=anxiety=you see where I'm going with this.....huge snowball effect!! I've had great success with cortisone injections (cartiledge, bone, surrounding tissue, & even into the nerves) for my back; painless out-patient proceedure done by a spine specialist. If you start by quickly eliminating as much of your back issues as possible, hopefully you & your (new?) team of Dr's/Specalist can get to the bottom of this hot mess ASAP & get back to your "Happy Go Lucky" self!! Hang in there :)

Happy_go_lucky612

A spine doctor that I went to was honest to me....(at least one doctor)...he said that the C3 disk is pressing on my spinal cord and that it's a medium in nature.  I can't even carry 2 pounds of anything....even my purse.....!  Otherwise...if I do...my spine goes thru spasms....!  The spine doctor wants to do Fuse my neck....do a cadiver bone graft and then use a plate and screws, however, I don't like the idea of a plate and screws going into my vertebrae above and below the problematic one.  I don't know if I'm a candidate for the artificial disk, but I've heard good things about it and someone on my block who has had it done in Germany....and my neighbor said that he is doing well.  I can't afford to fly there, however, if I could...I would definitely do it! 

Happy_go_lucky612

 After awhile the throbbing quiets down! I used to go to a rheumatologist and all he did was try to put me on medications and then I didn't feel well being on them. He injected me in my buttocks for fibromyalgia and then I felt like the medication went straight to my head and I felt like I was going to pass out and my heart started to beat real fast. The nurse came in and she told me to lye down and raised my legs and told me to try and relax and said my heart was beating fast. I told her it wasn't me being nervous or anything that my heart was beating fast....it happened after the injection and was the medication. The doctor said he has never seen this sort of thing happen to anyone before so ...I really don't know what is affecting me to cause these problems. And yes....I do need to see an endocrine doctor as my mouth gets dry and my gastro said maybe an endocrine doctor could give me some medication to make saliva. I am going to make an appointment as soon as I can! You are right also....from the pernicious anemia....things are starting to spiral into other directions too! I wish I knew someone with perncious anemia....to talk to...as I have so many questiions about what kind of diet to keep and how to constantly stop the burping and expelling of air from my stomach! I wish I could put that in a suggestion box for Dr. Oz....is to start a community in the U.S. with people who have pernicious anemia...it would be so helpful! Thank you for responding and foremost, for your help. Thanks....Lesa <3

melissaw72

When your heart beats fast after the injection, do you think it is some sort of allergic reaction?

Melissa.

Happy_go_lucky612

Melissaw72....it's possible I had allergy to the med at the time I didn't know I had pernicious anemia and a low B12 level in my body.  When I went to see a neurologist she told me not to take any medicatiions for 6 months until I get a higher B12 level in my body because medications affect your central nervous system and being my B12 was so low, she said I would get every side affect that medication had and some more!

Now with inflammation....I can't seem to drink any decafeinated coffee. or any time of carbonated drinks as my intestinal tract gets really disturbed and I start getting burning in my stomach and a lot of gas.  My regular doctor said I need to stay on tract on a diet so that I don't become sick.  With the inflammation...I am very sensitive to meds and don't feel well taking almost any of them.  It's like my body is rejecting meds....don't know why!  I did make an appointment with a rheumatologist and an endocrinologist in March...however, I do know it will take time to find out what autoimmune problem is lurking within me which I don't know yet and haven't found out!  Why does life have to be such a mystery! 

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