I have searched the entire web for a blog or a place that I could blog and hopefully get some answers. I about died when I found this website. I feel like my entire world has been turned upside down and so alone. Here is my story.
I am 24 years old. When I was 16 years old I was diagnosed with Endometriosis. I have always struggled with pelvic pain. It wasn't until this past year that my pain got bad. I had insurance through one hospital only. My obgyn wanted me to try Lupron. It was then that she went on maternity leave and wanted me to see just a regular doctor. He was actually really great. He put me on a low dose of pain medication and for once I felt like I had a life again. I was able to do what I loved to do. Of course it was all too good to be true because a few months later I lost my insurance. Thankfully my dad was able to put me on his insurance and I was able to see another doctor. It was like all the pieces had finally started coming together than I had to start all over again. Explain my pain, see several different doctors. The obgyn I saw said I needed to try physical therapy and would only continue my pain killers until I was able to get into the pain clinic. What a joke that clinic was too. They tried putting me on antidepressants knowing I had a really bad experience with them before. She finally agreed to do my surgery. I had my surgery 2 weeks ago. She said they didn't find any evidence that I had endometriosis.. After all these years and after all the stress of this.. They don't find ANYTHING!! They said it's Chronic Pelvic pain but yet they are putting me through another round of lupron!!! AND now they are taking the one thing away from me that I know actually works. It's such a low dose. I am not a druggie. I feel like that's what they think I am. I don't want to be in pain. I am at a loss and I feel so alone in all of this. I am doing physical therapy which seems to be helping a little bit. Not as much as I want it to though. I need answers and someone who can relate to this and advice as well..