Ahhh, never to late for hope. Keep hoping, that's what keeps us going. How have things been otherwise? Glad to see you back. I love success stories. Diana
Since I wrote this dire request for help, I have found a Urological PT to help me out with the problem. I saw her for only the second tine this week and I've seen no difference so far. The PT is telling me though that my muscles and nerves bothmare working just enough for the therapy to actually help in both ways. I'm excited and looking forward to getting my feeling back but I'm trying not to get my hopes up. Too late for that, huh?
My Mom has a form of Sarcoma ANEOSCARCOMA also this is a very rare cancer,
If you google Sarcoma FOUNDATION they are having a learning workshop WEEKEND in April in NYC at the HEMEMSLY PALACE .
If you and your family members attend you get discounted tickets for the events but for the big dinner fundraiser and silent auction it is like for people who actually have this cancer it is 300 and non cancer attentee it is very expensive like 500 per ticket.
I wish I could afford to go to learn more about it but I cant afford it! The main speaker if you can believe it is the ACTOR FROM THE SHOW (HOUSE) MR LAURIE
I also think you should write or email this show and ask THE DR's here because they are taking on all show Ideas
Best of luck to you You are already a survivior!
Forgot to ask you what about chemo put you into early menopause? Did you have a hysterectomy? Thank you for sharing.
How long ago did this occur? You may be experiencing neuropathy (nerve damage). I can see why that would happen with the cancer being in your spine (being close to the pelvic area). I'm not a doctor but have experience with neuropathy and chemo side effects. You must have been shocked with this diagnosis. Isn't this usually a childhood cancer? I know they say it occurs "rarely" in adults. I almost dislike that word, "rarely" they use it as though it's not going to happen. How are you dealing with things otherwise? Ask your Oncologist if neuropathy is a symptom that can occur over time. I have neuropathy under my right arm. It's totally numb and won't get better. I have to actually watch the razor glide over my armpit and watch the deodorant glide as well, as I can't feel it. Please let me know what you find out.
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