Hi Roxanne,

I have just read your story, you really are going through a  hellish time. I also have chronic pain, Fibromyalgia, MS, so I think I qualify a bit to know what pain really is. I too have a husband who is my rock and the one person I can rely on 100%. Lyrica really helps me with the pain but I guess doses really need to be right for things to work how they should. I to have family on my husbands side that haven't been a real part of our, or should I say my life ever since I met David my husband, the same goes for my daughter Sarah. Who is such a wonderful kind hearted young lady, I'm so proud of her. I to had a hysterectomy everything gone apart from one ovary, I was 30 when I had mine.

I guess I just wanted you to know their are people out their who know and can relate to some of your story, and know how it feels when family choose not  to support us. But I have friends that make up for a part of that part we all wish we had, grab those friends you choose with both hands because they are the next best thing to family.

Have a great day today, Liz :)

Hi Roxanne, I'm kinda in the same boat. The medical community doesn't do well at listening then because I'm not thin everything I have is weight related. I do agree that is true to a point but today's show just made me so mad. They compared eating carbs equal to a cocaine addiction. Soooo we are suppose to eat some carbs unfortunately to overcome any addition means you have to abstain. So how do I live if I don't eat. I have spinal stenosis, arthritis, fibromyalgia, Type 2, high blood pressure, cholestoral, edema, chronic fatique and pain, anxiety, morbid obesity. I no longer live the life I would like to but do what I can. I have a awesome 19 yr old daughter and I'm divorced have friends and family. It sounds like you have to big supporters your husband and mom. That is a blessing and I'm sure you have friends sometimes we have to focus the good we have and not the burden of what we don't. Please keep us up to date on how you are doing. All you can do is the best you can.

I take magnesium tablets and folic acid pills twice a day from the health food store it doesn't make me feel super great but if i miss a day the pain is worse

Hi,

I also have Fibromyalgia and want the Doctors to do a show on it. I am on a lot of meds as well and nothing seems to work. Right now I am taking Cymbalta and Muscle relaxers for the pain. I also have to have my husband clean most of the house and feel like all I do is go to the Doctors. I am only 28 and want to feel like I'm 28. It's good to find someone who knows how I feel.

Take Care,

Kbusch

Roxanne, I know what you are going thru I have fibro too. It is terrible to have to live your life like this I am so sorry part of your family doesn't understand or try to understand how bad you feel. You know Fibro is called the invisible disease but we are not. We still long to do things for ourselves and not feel guilty about having our husbands or family members to do things for us. It is so hard to except that you can't do these things anymore, so depressing and don't do much for you self esteem does it. Just please know it is not in your head ! It is real, doctor's don' t understand we can't get releif from pain most of the time and they are  afraid we will get hooked on pain meds, yet they tell us there is no cure for fibro. What are we to do. Right now just console our sisters and brothers that live with this awful theif called fibro. I wish you a less painful day if that is possible. I belong to a website that has caring women that understand what your going thru. I would like to invite you to join anytime, there is no charge and it's not a site that trys to sell anything we just try to cope with the help of online friends. The link is on my profile if you ever feel the need to talk with any of us at fibrochicks or here either, gentle hugs Bindy

HELLO,

I AM A FEMALE AND I SUFFER FROM FIBROMYALGIA AND MANY OTHER CHRONIC ILLNESSES.  I USE LYRICA 300MG 2 TIMES DAILY AND CYMBALTA 90MG 2 TIMES DAILY PLUS VICTIN FOR THE PAIN WHICH IS EVERY SECOND OF THE DAY. I AM SSDI AND CANNOT WORK ANYMORE AND YES, MY MOTHER IS MY CAREGIVER BUT GETS TIRED AND SO I HAVE LEARNED TO BE HAPPY BY MYSELF.  YES, AT TIMES I WISH I WAS NOT HERE AND REALIZES UNLESS YOU HAVE CHRONIC PAIN NO ONE UNDERSTANDS THE PAIN, FIBRO FOG ETC. MOST OF ALL STAY CALM AND DO NOT GET STRESSED AS THIS MAKES THE ILLNESS WORSE.  I HAVE WONDERFUL DOCTORES SO I FEEL BLESSED.  TAKE CARE. TRINIQUEEN, LEXINANA@JESUSANSWERS.COM

I am so sorry to hear of all you are going through.  I am 48 and have fibro too.  I am on so many meds and can't do much of anything w/o so much pain.  I worked in the yard for 1/2 hr yesterday and today I had to take pain meds to tolerate the day.  I am on Cymbalta and well as soon many other meds, have you tried that yet.

Hello to all of you.  I have been awful these past two weeks.  I'm not trying to complain, but I have had an emotional rollercoaster ride.  First, my landlord is evicting us because he wants to sell (obviously, he hasn't seen the news lately) or he is letting it foreclose.  How stupid?  We were crambling around to find a place, somehow afford another move and we have animals and a step-son to worry about.  We had a two-year lease and it;s not even one year yet.  Then I am now changing a few things that need to be changed in me.  I am trying to drink more water, I am seeing a great chiropractor (she's really great with people in pain), and eat a little more each day.  I have had a lot more pain, which we knew that once I saw a chiropractor.  I found out why I have even more pain, my back is a mess too.  I am going to beat this or at least make it more tolerable.  Well the great news is we found a great place to move too.  Excellent for a cheaper rent and our son has a great community to be around.  I am so relieved and a lot of my stress has been releviated.  I forgot to also say, I lost my 16 year old DOG last month.  He was with me everywhere I have been.  He was really like my own son.  It was so hard to stop crying.  I still do.  Anyway, back to my other news.  I really want to thank all of you for your help and your kind words.  Thank you for being there and I am finally looking at life a lot better knowing you are all there for me.Now, write back to me and tell me all the good things that are happening to you and then all the hard things you've been through.  I miss talking to you.  I would like to know more of the medicines you spoke about in your letter to me.  I will start writing to each of you more often.  You all help so much, you are all HEROS to me with your help and kind words....  Thank you Roxie = CSawyer

Hi Roxanne,

Reading your post really makes me appreciate good health.  I had chronic back pain since I was 15, surgery at 30, just really thought it was part of my life.  I was lucky enough to have one child.  At age 2, she was diagnosed with Juvenille Rheumatoid Arthritis.  I really couldn't bear her being in so much pain.  We started seeing a physical therapist at Children's Hospital and she was asking questions about Bailey's diet.  When the meds. started causing more problems for her, I really took a look at the food and drinks that she was consuming.  Changing a few simple things have really made a difference for myself and her.  She is now 8.  My aunt Marlene also had fibromyalgia and has seen positive changes.  She has been off her meds. for 4+ years now.  Not sure what meds she was taking.  I could find out if you want to know.  My pain has basically gone away.  I have been able to play volleyball and golf again, something I have not been able to do in over 10 years. 

If you are interested, I would be happy to let you know the things that we have cut from our diet, what we look for in food labels and we are eating a lot more fruits and vegetables (fresh), not canned!

It has made a amazing difference in our life!!  Reading your story really takes me back to the worst 5 years of my life.  Besides people and doctors telling me that I was crazy to have so much pain at such a young age and that I was an over protective mother, it took them almost 5 months to diagnose Bailey.

I love the show The Doctors and just signed onto their website.  Do you know how to watch past shows over the internet?  It is on at 2:00 a.m. our time and needless to say, I don't always catch it!

I hope and pray that better days will come your way!!

Connie

Hi Roxanne,

I want to say you are too young to be battling fibromyalgia and all the other gunk that goes along with it, but we both know it is no respector of persons.  I have had fibro for the past five years, and like you no one understands-especially why you can't even get out of bed.  I have experienced firsthand the hurt that comes from no one in your own family taking your illness seriously.  I agree with you that there is not enough talk about fibromyalgia, but I believe we are going to see that change.  I am writing letters all the time and in frequent contact with others who are trying to get us heard.  I have found that some of my pain meds actually make my pain worse.  Then quite by accident I learned that some antidepressants can deplete your body of essential vitamins, especially the B vitamins.  That to me was like finding a gemstone as I have been researching for a cause for my chronic/extreme fatigue.  Like you and the rest of us, I don't have enough good days to work on this as much as I would like.

If you would like I will send you my email address and if you send me a list of the medications you currently take I can compare them with some I have taken in the past.  But then of course there is always the insurance hurdle.  I try to keep a journal, some days I do real well, many days I am too tired to write or my fingers hurt too much but through keeping track of my pain cycles and moods I have been able to connect many flare ups and am now prepared.  Not that that makes them any easier of course, but at least I am prepared.

At the end of your day, no matter how bad it has been, try to recall just one thing you have been able to do.

Take care of you and know that when you can't take care of yourself there are angels watching over you to bring comfort and help!

Peggye