Call me insensitive, but I’d marry this woman in a heartbeat!

YES PGAD is a problem. They only told part of the story about what we suffer through. This disorder is 24/7 and usually involves a lot of pain and agony. Didn’t you listen – this lady has been suicidal as many of us have felt. The doctor claims to have found treatment that works for this – well maybe his treatment has helped 1 or 2 out of hundreds but for most of us his treatments do not help at all. We’ve tried everything, more doctors than we can count and still suffering. I’m not complaining about the show just wish they woulod have taken it more seriously. God bless any who have it, I know how you feel.

She mentioned being suicidal? I don’t recall that - please explain the pain and agony that orgasms bring?

I can only assume truspartan is a male since he spoke of marriage to a woman and, if so you cannot understand what this is like. Too often men simply write in about this as a joke or such so I’m not going to reply to your questions. I’m sorry if I’m wrong about you and if you really do care do some research on the internet.

Yes she did say suicidal!!!I think you should get a transcript of the show,cause I think you have selective hearing.This is for truspartan.

This just goes to show some people can hear the word orgasm & check the brain at the door. Did you not hear the embarrassment in this woman’s voice? What part of… she’s not gaining pleasure from this… did you not understand.

For those who are trying to understand this condition, I will simply say, it has ruined my life. I am a young, married mother of two young children with no other health problems but this horrible condition. Try to imagine having an itch that wont go away EVER, no matter how much you itch it. For the ignorant folks out there that think they would want a wife or girlfriend who has this, think again. Your not getting anything because you wont be able to satisfy her. What I dont think people realize when they hear of this bizarre condition is that not everyone is walking around having orgasms. I don’t. It is a constant state of climax but no orgasm. This is a horrible feeling. Would you want to be constantly in a state of ALMOST orgasming? Im a young women with so much going for me but this has been one roadblock I never thought I would ever have to live with and I wouldnt wish this on my worst enemy, not even for the man who posted such lame comments on this site. I hope you got your laughs, now I have to go take of my two children and hope Ill be able to sleep tonight.

For ladies who this may sound familar to there are two support groups for you.
www.psas-support.com and http://health.groups.yahoo.com/group/psas_group/

Research funding is needed to continue studies so women have a chance to be cured. Dr. Barry Komisaruk is head of the research program at Rutger’s University.

For men who are shallow enough to think this is not a problem, think male priapism. If you don’t know what that is, try Google and educate yourselves. And once you read about priapism, note that there is medication to stop it for you guys but there is NOTHING for the women with PGAD.

I wanted to comment on the episode about PGAD. I think that was what it was called. It was the woman who had to masturbate three times several times a day. It was nice to hear that there are others out there. I always have to have three consecutive orgasms too before I feel satisfied. It can be exhausting especially when you get older.

I was molested as a child and blamed for it so this was the last thing I needed. You feel you have to do it, but then there is the guilt and wondering what is wrong with you. I have scoliosos (sp?) too. It was interesting when they mentioned a possible connection. I have trouble with depression and am on Cymbalta. Being on an SSRI helps with the above problems. It’s not a great cure though. I hope doctors can come up with some kind of non-invasive treatment to help others out there who are afraid to talk about it. I don’t remember the girl’s name from the show, but commend her for being brave enough to help others. Thanki you!

It’s not so much the pain the orgasms cause, it’s how you feel that you can masturbate and have orgasms and then you have sex and nothing. It makes you feel like there’s something wrong with you. I had no idea that was actually a medical problem. It stinks. It takes a lot just to get an orgasm and by the time i have, he’s usually done. That’s what causes depression and suicidal thinking.

Imagine one day out of no where you start feeling sexually aroused. It feels good! You think, finally I have my sexuality back………but it doesn’t go away. It gets worse. It is now 24 X 7 a constant state of high arousal. Your breasts are tingling and swelling to the point of pain and won’t stop. Your clit is feeling like it is sticking far out like a man’s erected penis. You think people can see it. Your G Spot hurts constantly. Your entire plevic area hurts with the constant arousal. You try to sleep and your body jerks constantly as if you are having sex. All of us don’t have spontaneous orgasms. All many of us think about is having sex. It’s constantly on our minds. It’s hard to work and function to say the least. Many of us want to masturbate or have sex 24 X 7. Many of our husbands don’t understand and feel inadequate. Some of our husbands reject us. It is lonely and shame based. We are scared. We don’t want to talk about it to anyone. Then we research it on the internet desperate to find an answer. Our doctors don’t understand either. Some male doctors get aroused when we tell them. Some male and female doctors say “Your husband must really like this!” They have no clue. Yes, it sounds great to have 24 X 7 arousal, but it is PAINFUL and when we orgasm we have no relief. No refractory period. It quickly comes back. Multiple orgasms are not a cure and do not help. It usually causes an increase in the constant arousal. Some of us women cannot orgasm. For everyone of us who has come forward there has to be hundreds more who suffer in silence. We need help. We need people to take us seriously as men are taken seriously. Please inform yourselves at the above websites and spread the information to your friends, relative, neighbors and doctors. Thank you! Lois

PGAD is for real.  When I first developed the symptoms I thought I was going crazy.  It helped me somewhat when I discovered that it has a name and that other women were suffering too. 

I have tried various medications and treatments but with little relief.  Now even having a regular orgasm has become difficult.  Some days are awful – some are more managable.  But, I’m never symtom-free.  I have tried to go on with my life but it isn’t easy.  The pain in the pelvic region is awful and nothing seems to help.  I have to think about what I’m going to wear – some pants really irritate the area.

  This is a problem I never dreamed I’d have, never knew even existed until my symtoms started over a year ago.  I often wonder if this will be with me for the rest of my life.  It’s depressing to think it may be.

I forgot to say that I pray ever day for relief from this problem.  And I am very grateful for doctors and others who are working to find help for women like me with PGAD.

Now in response to truspartan—perhaps you can read now that PGAD is painful, the orgasms are not “pleasure” which was a misleading statement on the show. There is no pleasure in the orgasms. They are a painful release to extreme built up pressure and nothing more.

PGAD started when I was over 60 years old. Every single doctor I went to never heard of it and no one showed any interest. It is as though you are totally alone with a medical problem that no one cares about. There is pain, congestion, arousal, and despair with nowhere to go and no one to talk to. Thankfully there is a support group where we share information but no one has found a cure. Someone needs to help us because it is NOT pleasurable and it does not go away. I thought my senior years would be “normal” and now I have this to deal with. Doctors need to show an interest and try to help us – someone has to help us. Our lives are literally unbearable. We all suffere differently but we all suffer.

This is very real, I have this too. It is new to me. My symptoms just started a few weeks ago. The come and go. When they start I am in a state of arousal for about 4 days. It affects me as a mother. I am agravated and I have trouble not taking it out on the kids. I have three children who do not understand why Mommy has suddenly changed. I can’t concentrate. My husband is very understanding but he can’t make it go away. My doctor has never heard of it. When I lay down I jerk and twitch and spasm like I am in the middle of an orgasm but I do not get the relief of one. I am feeling like I am ready to climax all the time and my legs shake, sometimes even my hands. This is not a laughing matter. I am just beginning my walk with this disorder and do not know how bad it will get. My husband and I both pray God will take it away if it is his will. I am trying to learn to deal with it but it is not easy. Beofore you mock someone just because it is something that is related to sex maybe you should stop and think.

I also wanted to say that after my four days of arousal I onlt get about 2 or 3 days of a reprieve before it comes back full force again.

Prayingforrelief,

I know how scary it may be to not know what to expect. Everyone has different symptoms and some are worse than others. The advice I suggest is that you join the psas_group@yahoo.com where you can get very good advice, suggestions on what medications help people and support. I am in your shoes. I am only 32, a mother of two young children and a wife. I have been living with this for almost two years but 9 months while I was carrying my second child, I didnt get any symptoms at all but then it came back after I delivered my baby. Sexual activity makes it worse and distraction helps. You are definetely not alone and if you havent joined the support group yet, I suggest you do.It has helped me tremendously.

To all you woman out there that suffer from this disorder my heart and prayers go out to you!Hope someday theres a cure.I have never heard of this before,thats why I am glad there is The Doctors Show,I am learning new things all the time.Take Care

what i feel is that these women are masturbating too much. sometimes u have to turn to the LORD and ask him to help u with this problem. the clit is already sensitive, and if u keep masturbating, ur just gonna keep stimulating the problem!!! for instance, i knew this guy who has served some time in jail. i was joking with him and asked him “what were u doing in jail? jacking off?” and he said No, u dont want to jack off in there because when ur stuck in there once u start jacking off his penis would be sensistive, and look forward to being jerked. and if u have nothing but time thats all ur brain is gonna think to do, to kill time. so what i am saying is u ladies need to stop being selfish and stop tryin to blame this on a disorder when it is just ur freaky butt trying to get a nut. oh yea and please let me know if u think u got this condition so I KNOW NOT TO SHAKE UR HAND!

lidee32; No you need to ask the Lord to forgive you for not being sensitive to these ladies.You must not suffer from this so you have no first hand knowledge of it,so I believe you have no right to comment on this topic.The words you use to describe things shows ignorence!!!!!!!!!!

My symptoms come with NO manual stimulation.  They are totally unwanted and make my life miserable.

Yep, you’re right motimersmom … I’m a man so I don’t know anything. Obviously you are a very well-educated person so you must be a woman. My most humble apologies for being a man and posting.

It’s not so much that you are a “man” and posting—it’s the ridiculous posts you make that are annoying!! And so with accordance of your first post, let me be the first to call you insensitive—true fact statement!! Women have attempted suicide—lives have been altered and all you can do post that you would marry them in a heartbeat?? No you wouldn’t! You’d get what you wanted until you grew bored and then you’d split—face it! Some women’s husband’s have actually LEFT them due to this disorder!! And some just happen to have supportive ones. Frankly, you wouldn’t fit it either category.

Lash out much there 4?

“it’s the ridiculous posts you make that are annoying!!”

That’s laughable considering I’ve made 4 posts on this website ever. You have amazing abilities to conclusively assess my soul after reading 2 posts. You are indeed an amazing woman and I bow to your greatness.

Lighten up and you may just enjoy life a bit … but not unless you let go of some of the bitterness you’re harboring.