My previous & first blog regarding what we are going through, well is going to carry over today.
I am completely frustrated and disappointed in healthcare systems across the board. As a child, as I mentioned, I've had these problems. Yet no one would take it seriously. From a child I was almost treated as if I were a Hypochondriac, and to be honest, I was led to believe that a couple years ago. However I recall over the years many abnormal labs. Some were repeatedly abnormal labs, and others were random. One day back to "normal" or "slightly abnormal"- nothing enough to be of concern. (Yet abnormal should be a concern regardless right?)
After a zillion calls to different clinics & hospitals over the last few months. I thought I was seeing some success being that I had two doctors advocating for me to get into specialty clinics, including at the Mayo Clinic. I had phone calls that were over an hour long discussing problems and concerns, etc. I was told that I would be getting contacted within a couple weeks. Well, weeks have past with NO Contact.
One of my doctors called asking if I received follow up. I said I didn't. That doctor followed up with the specialty clinics, who in turn called me basically saying, "don't call here, we'll call you by the end of the week." Again, no call back.
Today I decided I'll call to see what's going as weeks have passed... well, turns out that I'm still lost in the abyss of paperwork, phone calls, etc. Realizing clinics are not understanding what referrals are for, etc. I was bounced around from a few different clinics, someone finally took the time to look at a file I have (although I have yet to see a doctor at this Clinic)... even she was confused. She said she'd have to look through everything, contact the doctor looking at my case and get back to me. Not the first time I've heard this.
Over the years I've been to the specialists at our local hospital that can't seem to quite figure out what is going on, which is why my new primary doctor believes I need to get out to a clinic that has what I need... yet they're just not entirely interested.
It's very frustrating. Here I am wanting to be healthy, I want to have energy, I want strength, I want a pain free life. It's something I am not going to give up on, it's hard having the patience though as I'm trying advocate for myself. I do have a fear that whatever it is that I am going through may need to be found now rather than later. I've watched far too many people address their problems too late in the game. Hopefully it's nothing that tragic. Either way, again, I'm too young to be this old.
I want and need energy to keep up with my young family.