I was home today and when home I watch this show. My dad died from this terrible thing March 18, 2002. I have to tell you that this show brought some closeure and some regrets for me. My dad was in a study program for this disease, however we did find out that he was given the plasibo and not the drug. I guess I never realized that this was a "fatal" disease... maybe a lot a denial -no maybe about that. I always thought that we and the doctors should have done more for him, I really didnt know that they couldn't. So I kind of feel like he died all over again this morning. My regret is that I stayed alot of the time in the hall way with the rest of the family outside my dads room while my mom and 2 sisters were in with him all the time. I did have a terrible cold and 2 weeks before this my mom had a heart attack and I didnt want her to get sick. I had to take my dad to his last offical doctors apt and was coming down with this cold, had a terrible soar throat that morning and had a slight fever, but mom just getting out of the hospital, there wa no one else to take him, so I never told anyone that I was coming down with it. I have always thought that I gave him my cold to him and thats why he got worse so fast. I wish I had been in his room more than I was, but I was praying that he would come out of it.
I just want to say that this show can help in so many ways, ways that I'm sure werent the initial intention
Thank you-Lori
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Lori- Perhaps if you had been able to speak privately with your father's Dr., you could have asked the Dr. whether or not your father's condition might have been worsened by being exposed to cold germs. The doctor may have been able to reassure you that, no matter if this had happened or not, the outcome would still have been the same.
Plus, I know that hindsight is always 20/20, but perhaps you could have worn a mask at that point in time, in order to try to avoid exposing your father (and others) to your cold.
But, I think that most people experience a varying degree of regrets whenever a loved one passes (we all go through the should have, would have, could have's in our minds), so if these are still weighing heavily on your mind so many years later, it might also be helpful to enlist the services of a professional who would be able to take you successfully through the steps of the grieving process. That should help you to understand that you are not to blame, and you will be able to relieve yourself from the guilt that you still seem to feel. (This is just a suggestion, I am not a professional anything; just my opinion!).
Hi Lori, I am so sorry to hear about your dad. I have PF and can tell you that your family and drs did everything that they could. It is unlikely that your coming down with something had anything to do with your dads passing. PF can speed up for unknown reasons, that is one of the worst part of the disease. Each of us copes in different ways. Your dad was aware of your love, he could feel it and still does. I doubt that he would want you to worry about any of this, his body may have died but his spirit and love will be with you forever. You will grieve his loss for a long time but try to honor your dad and the love you shared by living your best life. I belive that is what he would want for you.
HI. I was diagnosed with pulmonary fibrosis and was pleased that The Drs did todays story. There are many of us and 40,000 of us will die this year. When I was diagnosed with PF I was shocked when the dr told me there is no cure there is not even a treatment. I am blessed that my PF has progress slowly but that could change tomorrow. I want to say how brave your dad was and how compassionate to be a part of a clinical trial. He must have been a very special man.
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