I was home today and when home I watch this show. My dad died from this terrible thing March 18, 2002. I have to tell you that this show brought some closeure and some regrets for me. My dad was in a study program for this disease, however we did find out that he was given the plasibo and not the drug. I guess I never realized that this was a "fatal" disease... maybe a lot a denial -no maybe about that. I always thought that we and the doctors should have done more for him, I really didnt know that they couldn't. So I kind of feel like he died all over again this morning. My regret is that I stayed alot of the time in the hall way with the rest of the family outside my dads room while my mom and 2 sisters were in with him all the time. I did have a terrible cold and 2 weeks before this my mom had a heart attack and I didnt want her to get sick. I had to take my dad to his last offical doctors apt and was coming down with this cold, had a terrible soar throat that morning and had a slight fever, but mom just getting out of the hospital, there wa no one else to take him, so I never told anyone that I was coming down with it. I have always thought that I gave him my cold to him and thats why he got worse so fast. I wish I had been in his room more than I was, but I was praying that he would come out of it.
I just want to say that this show can help in so many ways, ways that I'm sure werent the initial intention