my name is maranda and i have a two year old daughter, natalee, who was diagnosed at nine months old with a condition called tuberous sclerosis complex. which she had gotten from her father. it has caused her to have lesions or tubors on the main organs of the body. one in the back of her left eye which has went away, one at the bottom of her heart, cysts on her kidneys, and multiple lesions all over her brain. one of which is causing her to have seizures which at this point we have controlled with medication.
if anyone else is going through this or has had experience with this please help me out with some advice i am a 18 year old mother with a two year old daughter