melissaw72's blog

HIPAA Laws

I just want to make pple aware of these laws.  I've had personal experience dealing with them and they really need to be in the back of people's minds and enforced. HIPAA = Health Insurance Portability and Accountability Act. The purpose of these laws is to protect the patient regarding confidentiality between personal and health information.  An example is, I see a psychiatrist.  I don't want family members to know of certain information that I've...
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Wishing All Mothers out there a Happy Mother's Day!

I hope all have a good Mother's day on Sunday 5/13/12.  My father and I took my mother out to dinner tonight (Mexican) and she went shopping at some stores she really likes beforehand.  Tomorrow my father is taking her out to breakfast. Melissa.
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I had a great day!

Hey everyone,  I'm sitting here reflecting on yesterday (5/11/12), and realized I had a really good day!  This AM when I woke up I didn't think I'd be doing much.  I just didn't feel like it, but at the same time couldn't find anything to do.  I didn't want to walk either because I wanted to rest my ankles (for some reason for the first 1/2 hour I walk it hurts my ankles terribly --...
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Results from the spinal tap on 4/3/12

For those who havent read the blog of why I got this spinal tap, it was because if this certain test came back low, it would diagnose me with narcolepsy (the last of all the things before diagnosis).  It was a test done at Stanford University, measuring hypocretin in patients' blood.  Low hypocretin indicated that it was a diagnostic exam to diagnose narcolepsy.  If it was normal, then it was normal and nothing else we...
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The Billy Blanks bands

I looked in the show synopsis and cant find where to buy these.  Anyone find it?  If so, do you have a link?  Thanks. Melissa.
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Mercury in Fish

The show today (4/30/12) talked about mercury in fish, and how too much sushi can cause side effects in some people.  Also talked about how 4 fish had more mercury in them.  The point of this blog is, if you COOK the fish (as opposed to sushi which isnt cooked) thoroughly, does the mercury still stay in the fish, or does it come out of the fish during cooking? Melissa.
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The "Privacy Pop"

With the Privacy Pop tent shown on the show today 4/24/12, all closed up for privacy, is it vented so the air recirculates somehow?  Does it get hot in there, especially in the summer? Melissa.
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Chiropractor segment 4/23/12

There was so much LOUD music behind what the chiropractor was talking about when he was reviewing the woman's problems with her, I literally could not hear the chiropractor -- the music was louder than he was. Melissa.
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Foods that have no expiration date

I found a really neat list of things that never go bad (no expiration date):   Honey Rice Sugar  (white and brown) Hard Liquor Maple syrup Pure vanilla extract Distilled white vinegar Cornstarch Salt If you want to read more about them in detail, visit this site: http://www.stilltasty.com/articles/view/35 Melissa.
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Swollen Leg

Has anyone ever heard and/or tried an "anti-inflammatory" diet?  Or drinking wheatgrass to help also?  This diet is supposed to work but apparently could maybe take awhile to work.  My sister is doing this to help out a procedure she had done awhile back; the spindle cell tumor and a lymph node was removed but her leg is still swollen for some reason.  No one can figure out why, so she is trying anything and...
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Blisters

My sneakers are almost a 1/2 size bigger than I need for the toe room, so my toes aren't' jammed together when I go walking.  And I have 2 different pairs to alternate.  New ones.  But every time I go out I come home with a blister or a few.  If I dont put a bandaid on every toe securely I will get a blister.  I even did that the other day and one came...
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Spinal Tap is over!

I had the spinal tap this AM and other than being a little sore and somewhat light-headed I'm fine.  Just nothing strenuous for 48 hours or so.  My neurologist took extra special care/ time to get the 9 large tubes of blood and spinal tap fluid to CA by the end of the day, or at the longest over-nighted.  I see him Thursday and the results will possibly be back by then.  The fluid will...
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Spinal Tap Tuesday 4/3/12

I am having a spinal tap tuesday and am really nervous this time (tentatiive though b/c there needs to be a bed available to have it done; wont know till tuesday AM).  I've had it done twice and they were in the ER so I didn't have time to think about them so I was ok.  But this one i've had time to think about it and am nervous about it. I remember being very...
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Check out this link!

Make sure to watch the people's expressions! http://www.youtube.com/embed/-icgySC4e2c This is hilarious LOL ! Melissa.
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Narcolepsy and Stanford University Study

I just found out that I have been definitely diagnosed with narcolepsy, with no doubt/question.  The spinal tap I will have April 3 measuring the hypocretin in the CSF is a whole other thing; it is a part of a study being done at Stanford University that I am in.  They are studying to see if people with narcolepsy  have low hypocretin (a protein in the CSF).  Whether I have high or low hypocretin wont...
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Testing for Narcolepsy

I have spent the whole day at all the DR appts I had!  One appt I had was with my neurologist .... I got the results from my sleep study ... i do NOT have sleep apnea.  However, he said I have narcolepsy, except he cant formally diagnose it because of some of the medications I am on that could maybe make me sleepy.  I have every other sign/symptom of it otherwise.  The one test...
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Cat Yoga T-Shirt

http://www.toiletyogamovement.com/thestore/ Here is the link if anyone is looking for it. Melissa.  
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Passing out in the bathroom

I can relate to this, except it wasn't from straining ..... my point for this blog is to say if you have a small bathroom, whether you strain or whether it's from something else, you could hit something hard (other than the floor) when fainting on the way down and a phone nearby would be good.  Not saying to bring your phone to the bathroom every time, just saying.  I passed out almost a year...
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To the Doctorsboards

I wrote in to tech help already, and I want to make sure this isnt only happening to me. Are you still sending emails to people when someone comments on their post or thread?  I've noticed in at least 3+ posts, some of mine, where someone has commented and I had no idea they'd written a comment.  I never got the email that says '(whomever) has commented in a post you are following' then the...
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Thinning Hair/Losing Hair

Why do people lose hair?  Any stories out there that might help others? I lose my hair when my thyroid is "off", when TSH is high.  But STRESS over a week (from personal experience) will make my hair fall out ... which effects my hair more than anything.  I know it is stress because it has happened more than once.  When I get home from where I was, got TSH done and it was fine....
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