melissaw72's Blog

Results from the spinal tap on 4/3/12

For those who havent read the blog of why I got this spinal tap, it was because if this certain test came back low, it would diagnose me with narcolepsy (the last of all the things before diagnosis).  It was a test done at Stanford University, measuring hypocretin in patients' blood.  Low hypocretin indicated that it was a diagnostic exam to diagnose narcolepsy.  If it was normal, then it was normal and nothing else we can do.

Anyway, the results came in and everything was normal.  I don't officially have narcolepsy, but because of every diagnosis I've had, he may still treat me in some way.  We need to talk (me and DR) about treatment options.  I see him either next week if he can fit me in, or in about a month.  Hopefully the treatment will help, whatever it will be.

Melissa.

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melissaw72

*edit * ... it wasn't measuring hypocretin in the blood; it was measured in the CSF.

I see him on the 17th.

Melissa.

GreenFish

Good luck.  I'm glad you are taking control of your health and well-being!

melissaw72

Thanks GreeFish :)

Melissa.

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