Everything at school went okay so far, until I got sick a few weeks ago. My right side starting to hurt worser than usual and
nothing I did stopped it. I couldn't eat, sleep, walk, sit, or exercise in gym class without being in excruciating pain and
nausea. I went to the doctor in september, and got a slip to get an ultrasound...and I got so caught up trying to keep up
with my classes that I didn't get it done until almost two weeks ago. The pain grew worse to the point to where I spent 9
hours in the emergency room Monday of last week. They did tests and I was stuck with having the option of waiting 3
weeks to see a specialist or 5 months as a new patient. This is okay under Medicaid. It's not okay when I have to take up to
800 milligrams of ibuprofen almost 4 times a day just to eat, go to school, and sleep.
I was finally able to see a specialist today with a same-day appointment. He did spot some problems like a enlarged liver
and spleen, but he said, and I quote, "Take some Motrin, graduate school, get a job, and have a happy life." How am I
supposed to have a happy life when I have to drop 2 classes just to manage the pain?
Then it dawned on me: Maybe I'm not destined to live a long and happy life like everyone else. Why else would a doctor
tell me that I may have potentially life threatening conditions, but it's not important enough to run a few more tests to
make sure otherwise. I'm so fed up with fighting back against a group of people who feels that I'm better off dead. I'm
never going to be taken seriously. No doctor will ever believe me. No stupid doctor on TV will ever believe that my
matters. They feel that I'm better off having a ruptured spleenso they can make as much money off of me as possible.
If they want me dead, then so be it. I'm done fighting, I might as well be dead.
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holy smokes! r u kidding me? u would rather be dead? well i guess u don't know what ur missin! have u ever heard of a second opinion? that's what i would get! dee
Hi, Merryprin, don't give up. When you have unexplained pain and tests don't show up anything, you become "labeled" as a chronic pain patient. Very, very few doctors are trained to deal with chronic, unexplained pain. So, do me a favor, even if you think this is the dumbest thing you've ever heard -- get your vitamin D blood level checked and let me know what it is. Almost every single person in a massive chronic pain program that I'm attending has been vitamin D deficient. Since you're still so young, you have a huge advantage over us older folks (I'm 46) who went years and years with a vitamin D deficiency. I'm guessing that your unexplained pain is due to a vitamin D deficiency and you, being still so young, have a great chance at avoiding permanent damage to your body by getting this treated now, if you are indeed vitamin D deficient. Please get this simple test and let me know the level so you know what to tell your doctor to treat it correctly. Looking forward to hearing from you. You are not alone, and there are people out there who want to help you figure this out!!! Larissa
I'd get a second opinion.
Melissa.
also, re Dea's comment.. I know you are trying to help, but I don't know that you get how exhausting and frustrating it is to go thru this. I have cried so much over the years and have just given up on days. It feels so helpless to go to dr after dr after dr.. to have test after test.. and to know somehting is not right, but no one will listen or help. I would just stand in the shower crying.. cry while just doing the dishes... cleaning the house.. going on with life, but crying thru it. It feels absolutely helpless. I really thought I had no hope of a future and I was destined to spend the rest of my life in pain and unable to do anything.. to enjoy life.
But there is hope, Merryprin. So please don't give up.
Larrisalle, you are so correct.
Please see my new blog.
I have suffered for yearrrsss with pains.. from head to toe. gone to so many diff drs. been checked for every thing under the sun. My dr's wrote me off. Treated ME like i was crazy. I finally diag myself with fibromyalgia and decided i was just going to have to deal with it.
my older sister just discovered she was vit d deficient. she had aches and pains all over as well. she took care of it and now feels great. I decided to have mine checked.. i am very deficient. I am now taking 50000mg per wk for 12 wks, just like my sister did. i have such high hopes.
Merryprinns, please get your checked. It is so worth that effort. also, i was advised long ago by my aunt, who is a nurse, that you have to demand you dr's do this or that. you have to take control and get answers. Don't allow them to make you feel brushed off or rushed out of the office or like you are crazy. YOU know your body and that something is not right. demand answers. and demand that vit d check.
good luck.
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My dad had the same problem for a couple of years, they told him everything from kiddney stones, to he's having a hard attack. Finally some hospital got it right it was his gallbladder. They took it out and he's been fine ever since. There is hope and don't give up, fight for yourself because no one else will. And You are worth fighting for.
Wow, Annon, I had forgotten about all the tears. Yes, it was like being trapped in a sci-fi movie where you know you're not imagining the aches and pains, and you know you're not a hypochondriac, and each new doctor visit turns into a worse nightmare than the last. It's enough to drive the sanest person insane. I could just feel that something was physically wrong, but there were so many symptoms, and the doctors appeared overwhelmed when I would try to explain how I was feeling. I was just beginning to start believing the depression, anxiety, and other vague diagnoses, and then, out of pure exasperation, my doctor ran the vitamin D test and found the deficiency. Even still, it took me researching the darned thing myself and forging ahead through the thick, mucky, marsh to find someone to help get me on the right treatment. And you're so exhausted, barely able to keep your arms up on the steering wheel to drive to the many doctors' offices or even to type on your computer, and your brain is foggy, and it hurts to sit and you're clutching your upper abdomen from the stomach and intestinal pain and clutching your lower abdomen from the bladder/gyn pain, and somehow in you there's this little voice telling you to keep pushing for answers. It was pure luck that I finally found an endocrinologist who knew what he was doing, even though he was not as well read in vitamin D as I had hoped for. He's one of two out of 22 doctors who didn't treat me like a nut case and who didn't push antidepressants and prilosec on me. I am also so, so thankful to people like Dr. Michael Holick, who spent 40 years of his life researching vitamin D. Without his and his peers' and students' work, you and I would still be walking around in pain and believing that it is depression and anxiety. I''m so glad for you and your sister.
Merryprin please get your vitamin D checked!!
larissalle, that is amazing.
i never thought i would find anyone like myself with all my various issues! i am so amazed. I am glad you found a solution for yourself. that is great!
reading your statement here i coud have sworn i made it 100 times myself. i had a doctor tell me once that at least he know i didn't have cancer or anything life threatening, so that shoudl make me feel better. and that when he tells his cancer patients they have cancer..well, then, theyyyy have something to worry about, not me. i know his heart was in the right place and he was trying to make me feel better, but it did completely the opposite! it was a slap in the face and a wake up call that, yet again, another doctor who doesn't get it. and it left me feeling helpless once again. i told him.. NO, knowing what IS wrong with you is part of the relief and that not knowing what the problem is, but knowing something IS wrong takes over your whole life.
i feel as though the last decade of my life has been taken from me. but, i now feel i have the rest of my life to finally enjoy. with the appendix now gone and me on my way to getting my vit D in check, i feel i have my life back.
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