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Scleroderma
Posted by smookie to Content/Information, Oct 24, 2009 7:03pm
I am a 34 year old woman who was just diagnosed with scleroderma. It is a rare disease that causes organ failure,lung problems and too much to name.The average life span for someone with this disease is 10-12 years.I have been sick for 5 years and no doctor could find out what was wrong.I was diagnosed with acid reflux,IBS,and colitis.I told my doctor that something was still wrong and he said no I have checked you and that is it. I continued to get sicker. My legs have been in terrible pain and I cannot hardly walk anymore for a year now and I have seen 5 different types of doctors and had numerous tests done.I finally went to a rhumetologist and she did blood work and tested me for Scleroderma and sure enough I have it.Turns out all of my pains and sicknesses were caused from this disease.Always trust your body because it knows best. I think people need to be educated about this. If I would have trusted all the other doctors I would never know what was wrong. Now I have a chance to love my husband and kids even more and make the best of the rest of my life.
Healthyforlife
Oct 25, 2009 3:04am
Hi Smookie Sorry to hear your story. I also have a similar story although I ended up having to have 2 major surgeries because I was not diagnosed correctly - IBS is something they diagnose you with if they don't have a clue. I'd like to send you some info if its alright with you. Please send me your email address if you would like this info. Here's to your your true health and wellness. All the best!