Erythema Nodosum--mystery disorder
Posted by rebeccastrecker to Disease/Illness, Jan 26, 2010 6:41pm
Erythema nodosum is a true "medical mystery". It appears as painful red hot lumps, bumps and nodules under the skin--especially on the lower legs. Along with the lumps patients often experience fever, joint pain and flu like symptoms. EN usually affects young women , but men older women and kids get it too. EN has many causes or triggers. Well over 100! It can be caused by things as benign as a normal pregnancy or strep throat. Or it can be associated with inflammatory bowel disease, sarcoidosis or even leukemia or lymphoma. Sometimes it is triggered by a drug reaction or birth control pills. Fungal or bacterial infections are responsible for some EN outbreaks. Once EN is properly diagnosed, it may take many, many tests to find the trigger--and in half the cases the trigger is never found even after a long search. Treatments are usually not very effective and range from bed rest to steroids. Research is non existent. So EN has been left behind by modern medicine. And because EN has so many triggers, no medical specialty embraces it. If you have EN you are you are left to suffer in silence. Not because doctors want to abandon you, but because they know so little about this mysterious and painful disorder.