Posted by MommaTofmorethan3 to Disease/Illness, Jan 28, 2010 3:08pm
Have a show to raise awareness about PWS, and how it affects not only the patients but the whole family and even the community. Inform the public that obesity is not just fat for these patients, that due to the deletion of Chromosome 15, causing the Hypothalmus gland to malfunction (controls hunger, thurst and releases hormones that prompt the release of substances responsible for growth and sexual development. There are not enough group home's that can provide the care for these patient plus no funds to help struggling families afford a group home. The House of Representives just passed Res 55 to make an awareness month for PWS. I have a 21 year old son with PWS and we have battled this for a long time please help us raise awareness so it will help the families just facing this. PWS affects 1 in about every 12,000 in both male and female.