Would you mind to explain what is known about fibromyalgia?

Such as:
My mother has it, am I likely to get it?
How to care for someone with it.
Any treatments available.
Explain it so that others who don't know about it can understand it.

This would be re...

Would you mind to explain what is known about fibromyalgia?

Such as:
My mother has it, am I likely to get it?
How to care for someone with it.
Any treatments available.
Explain it so that others who don't know about it can understand it.

This would be really helpful, considering for the longest time my mother, and other people she knows, were told that it was "all in their head". Now, there's a name for it, and a new drug, Lyrica, but still we don't understand much about it, and people who know my mother don't get why she's always in pain.

Thanks!

I was just diagnosed with this lifelong disease. I don't really know what to expect or how I should "behave". I feel isolated but I'm sure I am not the ONLY one to have this problem. For me it started with burning pain in my joints and muscles. It, over a 4 month period zapped al...

I was just diagnosed with this lifelong disease. I don't really know what to expect or how I should "behave". I feel isolated but I'm sure I am not the ONLY one to have this problem. For me it started with burning pain in my joints and muscles. It, over a 4 month period zapped all my strength. It finally took the root of swelling me to an increadible size - lasix did not help. I was hospitalized with huge doses of steroid using insulin to counteract the effects of steroids. Four days in the hospital just to try to get the disease undercontrol. Now they are talking IVIF and/or sending me to Cleveland Clinic. I've also been to an Oncologist for iron transfusions and been referred to a Pain Management Doctor. First, I have a disease I don't understand nor do I have it under control, and second - who can pay for all these doctor visits. I do have insurance but it doesn't hardly cover the cost of all the doctors I've seen or been told to see. Learning how to help myself help the doctors would be a hugh step in the form of "maintenance" for my new found autoimune disease.

PBC affects the liver bile ducts, It is an autoimmune system disease and the etiology is unknown. Many doctors do not know of this disease. A blood test will show the AMA levels which would indicate this disease.

PBC affects the liver bile ducts, It is an autoimmune system disease and the etiology is unknown. Many doctors do not know of this disease. A blood test will show the AMA levels which would indicate this disease.

I know so many people with this disorder including myself and my husband, and so little is known about it. I'd like a show to debunk the myths surrounding it and address what little is known, including theories and related conditions, about this increasingly diagnosed condition.

I know so many people with this disorder including myself and my husband, and so little is known about it. I'd like a show to debunk the myths surrounding it and address what little is known, including theories and related conditions, about this increasingly diagnosed condition.

I have sickle cell anemia. I had both of my hips replaced at the age of 22, had my spleen & gallbladder removed before age 8. I has several blood clots at the same time before I turned 21. More than once the doctors have said I would not live because of sickle cell complications. Half of m...

I have sickle cell anemia. I had both of my hips replaced at the age of 22, had my spleen & gallbladder removed before age 8. I has several blood clots at the same time before I turned 21. More than once the doctors have said I would not live because of sickle cell complications. Half of my friends that had the disease are dead or severely disabled. It hurts me that no one seems to take this disease seriously. Also I hate the fact that people look at me and see a healthy person. It rips me apart when I know how hard I have to fight daily but people say to my face "you're not disabled". Can you please talk about the large community of us that look healthy but have invisible disabilities.

My 9 yr old granddaughter has this tumor disease. In this disease you are missing the NFgene. I was wondering if they have tried stem cell research on this disease. McKenna is terminal. She has already had one surgery at 4 yrs old to help with her swallowing and breathing. But these tumors a...

My 9 yr old granddaughter has this tumor disease. In this disease you are missing the NFgene. I was wondering if they have tried stem cell research on this disease. McKenna is terminal. She has already had one surgery at 4 yrs old to help with her swallowing and breathing. But these tumors are coming back, she has them through out her whole right side of her body. She is always in pain and takes medicine every day. If there is anything out there that can help her I would like to know. We are in the middle of doing tests at Washington University Hospital in St. Louis Missouri. I have heard they have come out with a new chemo pill that may help. I believe this would be a very interesting show.