Congential Heart Defects (CHDs) are the number one cause of death among children. Twice as many kids die of Congential Heart Defects/Congenital Heart Disease than all Childhood cancers combined. The rate of kids being born with Congenital Heart Defects is 50% higher than the rate of Autism -...
Congential Heart Defects (CHDs) are the number one cause of death among children. Twice as many kids die of Congential Heart Defects/Congenital Heart Disease than all Childhood cancers combined. The rate of kids being born with Congenital Heart Defects is 50% higher than the rate of Autism - nearly 1 in 100 (although the "real" number of kids/families effected by CHDs is much higher, if you consider the termination rates - usually after 20 weeks - as well as the rate of undetected CHDs that kill our kids/young adults). Yet unlike Autism or Cancer, CHDs are NOT a "household word".
30 years ago, the more complex CHDs (like HLHS) were universally fatal. Even today, the national average 5 year survival rates are about 50% (higher at top centers - but most people cannot afford to travel to top centers). After a minimum of 3 surgeries, these kids need termendous therapy and enrichment to "catch-up" to the years of restricted blood flow to the brain.
Please help families who struggle in silence through emotional, financial, and personal stress and isolation by shedding some light on this medical miracle.
The Doctors and Surgeons who work to make these kids successful are silent heroes - dedicating their lives to the silent voices of these kids. The research teams at Children's Hospital of WI, Children's Hospital of Philadelphia, and other centers doing CHD research are working hard to help these kids not just survive but to "live" as typically lives as possible.
Unlike other pediatric issues, CHDs are lifelong issues, leaving few families time or energy to advocate like these kids deserve.
Please help.