I'd love to see a show devoted to CCSVI and MS (see facebook page http://www.facebook.com/pages/CCSVI-in-Multiple-Sclerosis/110796282297 ). Recent research from the Univ of Buffalo shows the 80% of people who are clinically diagnosed with MS have a CCSVI problem.
This could possibly be ...

I'd love to see a show devoted to CCSVI and MS (see facebook page http://www.facebook.com/pages/CCSVI-in-Multiple-Sclerosis/110796282297 ). Recent research from the Univ of Buffalo shows the 80% of people who are clinically diagnosed with MS have a CCSVI problem.
This could possibly be the cause and/or cure for MS, millions of people will be interested.
This moves MS from a neurological disease to a vascular disease, so most neurologists are putting this down, I'm not sure if your show will allow it to be produced.
Thanks

When my daughter was 9 months old a doctor told me over the phone she had SMA 1and only had a few months to live. He also added it would be wise for us to prepay her funeral while we had a clear head. He was correct she does have SMA but type 2. My daughter is turning 5 this November and is...

When my daughter was 9 months old a doctor told me over the phone she had SMA 1and only had a few months to live. He also added it would be wise for us to prepay her funeral while we had a clear head. He was correct she does have SMA but type 2. My daughter is turning 5 this November and is healthy and happy. We are lucky because we learned how to care for her and we searched and found dr's who understand how to manage SMA. Sadly there are too many dr's who just dont understand and are giving horrific care to sma patients. Please help us stop this. Please do a show on SMA and include the families who live with this everyday. And most importantly please include the doctors with knowledge on SMA. Especially Dr. Bach. NJ School of Medicine. Without him and many others most of our children would be gone. A show on SMA would change the SMA community forever. People will learn and maybe even a doctor or two

You could follow me as I go through treatment for Inflammatory Breast Cancer and then show it next year for Breast Cancer Awareness month.

I hope to start treatments next week.

Barbara

You could follow me as I go through treatment for Inflammatory Breast Cancer and then show it next year for Breast Cancer Awareness month.

I hope to start treatments next week.

Barbara

Erythema nodosum is a true "medical mystery". It appears as painful red hot lumps, bumps and nodules under the skin--especially on the lower legs. Along with the lumps patients often experience fever, joint pain and flu like symptoms. EN usually affects young women , but men older w...

Erythema nodosum is a true "medical mystery". It appears as painful red hot lumps, bumps and nodules under the skin--especially on the lower legs. Along with the lumps patients often experience fever, joint pain and flu like symptoms. EN usually affects young women , but men older women and kids get it too. EN has many causes or triggers. Well over 100! It can be caused by things as benign as a normal pregnancy or strep throat. Or it can be associated with inflammatory bowel disease, sarcoidosis or even leukemia or lymphoma. Sometimes it is triggered by a drug reaction or birth control pills. Fungal or bacterial infections are responsible for some EN outbreaks. Once EN is properly diagnosed, it may take many, many tests to find the trigger--and in half the cases the trigger is never found even after a long search. Treatments are usually not very effective and range from bed rest to steroids. Research is non existent. So EN has been left behind by modern medicine. And because EN has so many triggers, no medical specialty embraces it. If you have EN you are you are left to suffer in silence. Not because doctors want to abandon you, but because they know so little about this mysterious and painful disorder.

Many people have all three of these conditions and often are only partially diagnosed if diagnosed at all. Doctors are not very educated on these conditions and most of them don't realize that there is a link between them! There are thousands of us....and doctors think its rare. Its not as ra...

Many people have all three of these conditions and often are only partially diagnosed if diagnosed at all. Doctors are not very educated on these conditions and most of them don't realize that there is a link between them! There are thousands of us....and doctors think its rare. Its not as rare as you think its just under diagnosed!!!!!!!!

Dandy-Walker Syndrome is a brain malformation of the cerebellum. There has been limited research conducted in this area. Most parents, who's child is diagnosed in-utero, are encouraged to terminate the pregnancy because that's what the text books teach. We were one of those couples who wer...

Dandy-Walker Syndrome is a brain malformation of the cerebellum. There has been limited research conducted in this area. Most parents, who's child is diagnosed in-utero, are encouraged to terminate the pregnancy because that's what the text books teach. We were one of those couples who were diagnosed at 18 weeks gestation and encouraged to terminate because they could see NO brain on the ultrasound. Our son had seven brain surgeries and five other surgeries before he was 3 1/2. He just started "regular' Kindergarten.

Together with another family, the first non-profit organization, The Dandy-Walker Alliance, was formed in hopes of raising awareness and providing hope to other families. In 2008, Congress passed the FIRST House Congressional Resolution on Dandy-Walker, #163, to help raise awareness. We've spoken to over a thousand parents of children with Dandy-Walker over the past few years, as well as many adults who have Dandy-Walker. It would be great to bring awareness and to really gain a better understanding of the broad spectrum of affects that individuals have from this syndrome. Check our our web site at www.dandy-walker.org

Thank you for your consideration.