I am trying to get The Doctors to do a show on Tourette's Syndrome and how it affects children. Many people think of cussing and yelling out when they think of Tourette's. I feel that people need to be educated on what Tourette's Syndrome is really about. I have identical twin sons(Caleb and Austin, age 10) that have Tourette's. Austin also OCD that goes along with Tourette's sometimes. I am sick of the disease being made fun of and portrayed as the "cussing" syndrome. I would love to take my sons on the show and let them show the world that it isn't all about cussing. It is a disease that can make their school days hell. It can cause them not to sleep at night because the OCD makes them afraid that they are going to die. I want to cry everytime one of my sons say that they wish that they didn't have Tourette's. But I remind them that there are many, many, children out there that have life threatening illnesses and that they should be very thankful that all they have is something that makes life more interesting and challenging. I know of many people in my area who have children with Tourette's, but yet there are no specialists in my area. I drive almost 6 hours to see a specialist at the Cincinatti Children's Hospital in Ohio. But it is well worth the drive--our Dr. is great. I need as much advice as I can get on how to advise my sons on how to deal with the kids that make fun of them for doing tics that are out of there control and I feel that the Doctor's could be a great help.
If anyone has any ideas on how to get my thoughts heard, I would love the help :)