About Me

My name is Brianna and I am a college student going for my undergraduate degree in Psychology and then I am going to go to Medical school. I have grown up in the medical world.  I have Hearing Loss, a Hypermobility Syndrome and many other things.  I have had over 15 surgeries.  I love physical therapy and it is a big part of my life since I have the hypermobility syndrome and Osteogenesis Imperfecta.  I love to watch shows such as house, ER, and the Doctors.  I spend about 4-8 hours a week volunteering in a hospital.  I work with kids with disabilities like myself, kids with braces, crutches, wheelchairs, standers, and such.  As far as life goes I love every day!! Each day is a blessing because it brings some new challenge that I need to figure how to overcome. I love challenges, so I love everyday.

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Recent Blog Posts

Long time no blog

Hi everyone I decided to come back and blog, Some of you may not have seen any of my blogs I don't know that I have written one in over a year, but I used to be quite active on this site. I quit blogging however because the site was becoming one big dietthon. Everyone was giving diet updates or weighloss updates and the medicine ( the reason I came to this site) was lost....
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wishbone day!

On May 6th wishbone day is being celebrated internationally. Wishbone day is an international celebration of awareness for Osteogenesis Imperfecta.  I ask that everyone wear yellow in celebration of wishbone day on may 6th. It will help bring research to Osteogenesis Imperfecta, and maybe a much needed cure. Thanks a billion! Brianna
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melissaw72

Thanks for writing back!  Yes, the site was/is  A LOT about the 17 day diet ... it  was advertiised on their show awhile back.  It isn't as bad now, but now they are blogs and posts mainly about Jillian being on the show.  You are right, the original format of helping each other with adviceand supporting each other in blogs, posts etc and learning things just isn't there anymore.  Once in awhle a post will pop up that isn't related to Jillian now, but if you look at how many people have read it, it isn't many compared to the good days when all of us were writing. 

My sister's final diagnosis was a spindle cell tumor (size of an egg) in her groin area, pushing between an artery and vein, preventing proper blood flow --  but was benign (it took 3 weeks to find this out because they'd never seen the type of cells she had, and they wanted to make sure 100% it wasn't CA).

Glad to see you here, feel free to email me whenever!

Melissa.

melissaw72

Hey Brianna, hope is all ok with you.  Just wanted to let you know my sister does not have a blood clot, but a spindle cell tumor wrapped around her femoral vein, but is benign.  If you know anything about it will you please email me.  Thanks.

Melissa.

melissaw72

Hey Brianna, I hope all is ok with you, havent seen you on the site for awhile. 

Remember my sister had that swollen foot for awhile but wouldn't get it checked because she wanted to not stop running?  Well, apparently she got it checked before she moved from LA to NJ, and they said it was probably from her running.  I specifically remember you writing about getting her lymphatic system checked (or something to do with the lymphatic system).  Anyway, recently (a year later) after she traveled, her leg swelled so she finally got it checked by primary who sent her to a vascular DR, and it got to the point today where she had to literally press the vascular DR to see her today because she was starting to not feel her arm.  Long story short, she has a blood clot, is in the hospital, and on blood thinners now.  Thing is, after you mentioned the lymphatic system I specifically asked her to just look it up, that was it, just look it up.  idk if she did, but apparent;y not because she never got checked in the past year after she moved. 

When she was in LA and she did get it checked about a year ago, and they said it was probably from running, was that a misdiagnosis, should have needed further testing, or was it something that really couldn't have been caught at that time had she pursued it?  Could it have been prevented then?  Just was curious because I remember you posting about it.  If you can, can  you please answer me either on this site or email?  my email address is

melissaw72@verizon.net

If you can email me will you please title the email with your name and from the DRs site because sometimes I wont answer them if I dont know where they are from.  Thanks.  Hope all is ok with you.

Melissa.

Larissalle

Hi, Brianna, Dr. Holick at Univ Boston Med Center said that his lab is developing a test for people who have vitamin D absorption problems. He said that you could contact him to participate if you wish.  Please feel free to contact him directly or have your Mayo Clinic doc's or local doc's contact him.  His contact info is at: http://www.bu.edu/phpbin/webph/index.php?index_id=X35050

http://www.bumc.bu.edu/endo/faculty/holick/

TheDoctorsBoard2

I repaired the bold for you :-)

ElizabethW

Hi Brianna,

With your problems having a permanent central line put in is probably the best thing for you.

You are so young to have to go through what you are going through, but having a possitive attitude will get you far.

Have a good evening. Liz :)

ElizabethW

Sorry Brianna I forgot to ask how long was your hospital stay for, and was you  treated for the C-Diff at home. So did you have to have a feeding tube fitted because you also lost a lot of weight? 

Thanks for sharing it really does help,

Liz :)

ElizabethW

Hi Brianna, I did have a picc line fitted at the end of my first week, because my veins got shot to pieces from the medications they were giving me. My veins are small and blow really easy and after the 7th IV line blew they put a picc line in.

Thanks liz :)

TheDoctorsBoard1
There is a problem with your photo in the pink dress. The problem you are having with your picture is due to the underscore _ at the end of the filename. The name must end in either a letter (a to z) or a number (0 to 9). To correct this problem please rename the file and then upload it again.
melissaw72

How was the MCAT?

Melissa.

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Photo Comments

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tricia214 says:
laughing ~ it's BE-YOU-tiful BRIANNA!
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stkatesgirl says:
Melissa, No they aren't. I am too young or at...
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melissaw72 says:
Great picture!  Are those your kids in the picture with...
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BETHGARDNER says:
Thank you for comments, you are right I will not...
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stkatesgirl says:
The little bump on the back of the brace is...
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